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Topic: ehlers danlos syndrome

New with Topic: ehlers danlos syndrome


Jilly
Jilly posted a blog entry
Much like my old VW Bug
I saw the neurologist at Vanderbilt yesterday & am back to square one. My pulse and BP didn't do the POTS freak out while...
9 days ago Bad Glue | Topics: ehlers danlos..., nashville
 
Jilly
Jilly posted a blog entry
An article about me and the Mr.
I mentioned Ehlers-Danlos Syndrome in this article about me and my husband that has appeared in our local paper. [link pops up...
12 days ago Bad Glue | Topics: ehlers danlos..., nashville, jazz, poetry
 
BendyGirl
BendyGirl posted a blog entry
Call Me Cruella
It always seems like such a good idea at the time. The merest hint of a good day and I go into 'take up your mat and walk'...
 
BendyGirl
BendyGirl posted a blog entry
Medical Mysteries
Steph at The Biopsy Report, friend and fellow bendy person has just posted this excellent insight into the issue of medical...
 
BendyGirl
BendyGirl posted a blog entry
Ehlers Danlos Video
Although this is a blog about life with Ehlers Danlos Syndrome I have realised it's lacking in details about EDS. This 5...
 
BendyGirl
BendyGirl posted a blog entry
I want great care!
As the issue of I want great care heats up the various medical bloggers I thought it time to relate some of my experiences of...
 
BendyGirl
BendyGirl posted a blog entry
Hello my name is Bendy and I am an idiot
Today I received confirmation of something I have long suspected. I am an idiot. I realise this is not news to the rest of the...
 
BendyGirl
BendyGirl posted a blog entry
10 years ago...
Recently a couple of people have tagged me to complete various me-me's. As half the blogosphere has already completed them I...
 
BendyGirl
BendyGirl posted a blog entry
You know it's a bad day...
When after only being awake a few hours you're ready to go back to bed. Having been given evil looks by some old bloke for...