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Topic: cystic fibrosis

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~aspen~
~aspen~ posted a blog entry
Laid off
A lot of speculation has come about with my recent lay off.It is quite a coincidence of how I was on IVs for three weeks twice...
 
PJ
PJ posted a blog entry
China helps CF in Wexford!
Darragh Hudson from Wexford, who was a dear friend of Tracie has decided to organise his own charity cycle in aid of Cystic...
 
PJ
PJ posted a blog entry
Sponsorship Update
The sponsorship raised from the two charity cycles for the Tracie Lawlor Trust has now come to €60,000. There are still...
 
~aspen~
~aspen~ posted a blog entry
Miss my Flash
On Tuesday I started using a new blood glucose meter. I have been using a FreeStyle Flash for several years and absolutely...
 
~aspen~
~aspen~ posted a blog entry
Remembering diabetes
I am finding the hardest part of diabetes is ‘remembering’.I have to remember to check my blood glucose...
 
Parthena
Parthena posted a blog entry
I Have The Answers Now - Well, One Of Them
So, I bought the last existing copy in three counties of The Secret on CD at one of the many Wal-mart’s I visit in my...
 
Neilbe
Neilbe posted a blog entry
Imagine
Some thoughts on the current debate on the embryo bill in the UK.
 
~aspen~
~aspen~ posted a blog entry
Various gunky topics
One of my difficulties in staying healthy while living with Cystic Fibrosis is airway clearance. I have to spend time every...
 
~aspen~
~aspen~ posted a blog entry
Final appeal - personal letter
I thought I would post my letter here as part an educational tool about CFRD and as well a help to any one with CFRD that has...
 
annamade
annamade posted a blog entry
A Different Focus
So my last two days have been spent mostly thinking about Cystic Fibrosis. The interesting thing is, while I never thought I'd...
83 days ago Still Kissing Frogs | Topics: cystic...
 
~aspen~
~aspen~ posted a blog entry
Awareness
Happy May!  Congress has officially named MAY Cystic Fibrosis Awareness month. Yippee!!So this month maybe you can do one of...
 
~aspen~
~aspen~ posted a blog entry
Latest scoop on the pump
I think it is time for an update on the case of the un-insurance-covered insulin pump and continuous glucose monitor system.My...
 
~aspen~
~aspen~ posted a blog entry
First Monday Challenge 1.0
Come on people!  Don’t make me do this all by myself!  Let’s support each other in improving our health! (okay,...
 
sandiegorealtor
sandiegorealtor posted a blog entry
San Diego Events - May 2008
Allied Gardens SpringFest      May 2-3The community of Allied Gardens is celebrating the season of...
 
~aspen~
~aspen~ posted a blog entry
It’s so good to be free!
Today I feel like the Scarecrow in the Wizard of Oz just after Dorthy helps him down off of his watch-post. Dancing around...
 
~aspen~
~aspen~ posted a blog entry
The day is FINALLY here!
I am soooo happy to be getting rid of my PICC line today!  I am done with IVs!!!Wish I could show you my happy dance!  I do...
97 days ago Salty and Sweet | Topics: Challenges, Cystic..., Tune-up
 
PJ
PJ posted a blog entry
Charity Event
Cathal Beale has organised a table quiz in Lexington Kentucky for Cystic Fibrosis. This will take place on Wednesday the 23rd...
 
~aspen~
~aspen~ posted a blog entry
Frustrations…
This week I have gone back to work.  My brain is fried from all the medications and lack of sleep, so please forgive me if I...
 
PJ
PJ posted a blog entry
Climb for Cystic Fibrosis
Philip Walsh who is a dear friend of Tracie Lawlor has decided to climb Mount Kilimanjaro for the Cystic Fibrosis Wexford...
 
~aspen~
~aspen~ posted a blog entry
CFRD Fact #14
Complications of CFRD (poorly controlled):Infections due to decreased white blood cell count phagocystosis. Phagocystosis...
 
~aspen~
~aspen~ posted a blog entry
Life at home
I am quite overwhelmed with all there is to do now I am back home.  Bills to pay, laundry to do, meds to take… I am...
 
~aspen~
~aspen~ posted a blog entry
CFRD Fact #13
Genotype is predictive of pancreatic status:Delta F508 (the most common genetic defect in Cystic Fibrosis) homozygous genotype...
 
~aspen~
~aspen~ posted a blog entry
Home from the hospital
After almost a week, I am home from the hospital.  It felt sooo nice to fall asleep in my own bed curled up with my little...
112 days ago Salty and Sweet | Topics: Challenges, Cystic..., Exercise
 
~aspen~
~aspen~ posted a blog entry
Dietary is nuts
It is official. First the hospital dietitian tells me that I am crazy for thinking that dairy products make me cough despite...
114 days ago Salty and Sweet | Topics: Challenges, Cystic..., Nutrition
 
~aspen~
~aspen~ posted a blog entry
Still at the health club
I’m still in the hospital tonight.  Just thought I would make a quick post before heading off to bed.It is quite a...
 
~aspen~
~aspen~ posted a blog entry
CFRD Fact #12
How might early diabetes cause CF clinical decline? It is currently unknown, but here are some theories:Insulin...
 
~aspen~
~aspen~ posted a blog entry
CFRD Fact #11
The American Diabetes Association (ADA) classifies CFRD under “other specific types of diabetes” involving diseases...
 
~aspen~
~aspen~ posted a blog entry
CFRD Fact #10
Weight loss and decline in pulmonary function began 4-6 years before the onset of diabetes.After two years of insulin...
 
~aspen~
~aspen~ posted a blog entry
CFRD Fact #9
Median Survival Rates in CFRD:Clinical data was collected at the Minnesota CF Center between 1987 - 2002 from 1,081 Cystic...
 
~aspen~
~aspen~ posted a blog entry
CFRD Fact #8
Interesting tidbits about CFRD:Diabetic ketoacidosis (DKA) is rare. (I would love some more info on this). Pancreatic...
 
~aspen~
~aspen~ posted a blog entry
Inner strength
“You are a very strong person” I am told time and time again. How could this be so, as my body seems to be falling...
 
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